M = 81 years (SD = 11)
Note: all values have been rounded to the nearest whole number for consistency; M stands for mean; SD stands for standard deviation.
As a first step, we present the results of 41 studies on wishes and needs of NH residents, excluding those that used the CANE questionnaire. Subsequently, we present the results of the remaining ten studies that collected data on wishes and needs with the CANE instrument. This separation seemed reasonable, as the CANE questionnaire is the only instrument that explicitly distinguishes between met and unmet needs. Therefore, the separate presentation and summary of the CANE studies provide a comprehensive overview of the results collected with this questionnaire. The wishes and needs found in the 41 studies presented first could be mapped to 12 themes. These are shown in detail in Table 3 .
Explicit description of the themes.
Themes | Outcomes |
---|---|
(1) Activities, leisure, and daily routine | |
(2) Autonomy, independence, choice, and control | |
(3) Death, dying, and end-of-life | |
(4) Economics | |
(5) Environment, structural conditions, meals, and food | |
(6) Health condition | |
(7) Medication, care, treatment, and hygiene | |
(8) Peer relationship, company, and social contact | |
(9) Privacy | |
(10) Psychological and emotional aspects, security, and safety | |
(11) Religion and spirituality | |
(12) Sexuality |
The need to make the day active and momentous has been addressed in several studies [ 27 , 28 , 38 , 46 , 49 , 58 , 60 ]. Accordingly, wishes for meaningful, person-specific, enjoyable, social, and recreational activities were mentioned [ 27 , 28 , 38 , 46 , 60 ]. Residents like to practice their hobbies and consider activities on special occasions and events as important [ 27 , 38 ]. Various pursuits and leisure activities that residents like to do could be classified under this theme: Reading, listening to music, having contact with animals, keeping up with the news, spending time outside, doing activities outside the NH, playing games, partying, tea-time, gardening, helping others, doing crafts, and spending time with others [ 27 , 38 , 46 , 49 , 58 ]. In addition to the need for specific activities, a general wish for a varied life with diverse offerings and activities was also mentioned [ 60 , 62 ], in which residents can experience self-sufficiency [ 49 ].
Moving into an NH can result in a loss of autonomy and independence. Over half of the 41 studies [ 20 , 22 , 25 , 26 , 28 , 30 , 31 , 32 , 33 , 35 , 36 , 38 , 39 , 49 , 50 , 52 , 57 , 58 , 60 , 62 , 63 ] demonstrate that it is essential for residents to do things for themselves, to have a say in decisions, and to maintain their autonomy to the greatest extent possible. In various studies, NH residents described an experienced dependence and a wish to gain more autonomy and independence: “The stroke nurse who was to do the swallowing test never came. She was to sign me off for swallowing so that I could eat bread… You see I am very determined to be as independent as I can be? I would love to be able to walk to the toilet on my own” [ 52 ]. Residents reported a wish to make decisions for themselves or to be involved in the decision-making process and that this is central to their well-being and quality of life [ 60 , 62 ]. The need to have a say relates to both day-to-day issues and far-reaching decisions. For example, residents wish to have control over daily concerns such as deciding when to get up and go to bed [ 28 , 38 , 39 ], what clothes to wear [ 38 , 58 ], what and when they eat [ 28 , 39 , 49 , 63 ], how they spend their day [ 49 ], who they share a room with [ 39 ], and whether they participate in social activities [ 49 ]. Residents also want to make their own decisions on issues related to hygiene and care routines, including bathing and showering type, how often to bathe or shower, and oral hygiene [ 35 , 36 , 38 , 39 , 63 ]. Control over medical matters is highly important to many residents. For instance, residents would like to have a choice regarding how often and which physician they consult [ 35 , 39 ]. Residents are concerned about their future and would like to make advance directives and living wills. According to one study [ 67 ], over one-third of residents have a written advance directive, i.e., either an advance directive, or a living will, or a combination of different documents. Residents who already have an advance directive most often want their son or daughter, or a close relative, to act as surrogate decision makers should their own decision-making capacity cease [ 26 , 50 ]. In decisions concerning care, residents wish to determine who has a say for themselves. Some residents wish to make all decisions on their own, but many would also like family members and relatives to have a say, while still others would like staff or the attending physician to make final decisions and hand over responsibility to them [ 22 , 25 , 31 , 32 , 35 , 62 ].
To maintain a sense of freedom and independence, residents feel the need to regularly leave the NH on their own and independently [ 39 , 57 , 63 ]: “I tell a member of staff when I leave the NH. This is not a problem. Sometimes I am not back before midnight. I have a key. So, I can come and go whenever I want. That’s great. Because the staff do not have to give a key to the residents” [ 57 ]. Some residents want to move out of the NH or want to have control over their own discharge. This is partly based on the need to live in familiar surroundings again, but also on the wish for more self-determination and freedom [ 33 , 39 , 62 ].
People often move into a NH at a late stage in life, when the issues of dying and death become increasingly important. Residents have different ideas about the end of their lives and dying in the home. NH residents wish not to become bedridden and in need of care in the last phase of life. Furthermore, they wish that their health condition does not deteriorate further allowing for a degree of mobility and activity. Despite impending death, residents want to continue to make plans and be content [ 40 , 41 ]. Contact with family members, friends, relatives, and other confidants, such as nursing staff, or the attending physician, plays an essential role in this phase of life [ 40 , 66 ]. The results show that residents are concerned about discussing the topics of dying and death with familiar people. Residents want to prepare for death and plan for the process of dying and the time after [ 57 ]. In addition to a general need to talk about the approaching death, residents are particularly concerned about symptom management, emotional, psychological, and spiritual support, possible counseling services, and funeral issues [ 27 ]. One study [ 32 ] found that there is often a lack of opportunities to discuss one’s values and needs regarding end-of-life treatment and care with the nursing staff. Resident reactions to such staff discussions vary greatly from unnecessary to a very strong need. Wishes for pain management and more personal and time-intensive care include maintaining personal hygiene and the requirement of additional medical care in the last phase of life [ 40 , 56 ]. There are also clear wishes and needs on the part of NH residents regarding the dying process. In this context, several studies shed light on the context in which people want to die, such as the place of dying, the condition in which they want to die, and the people they would like to have by their side when dying [ 26 , 41 , 50 , 66 , 67 ]. In most cases, residents would like to die in the NH and not be transferred to another facility, such as a hospital. [ 26 , 41 , 50 , 66 , 67 ]. However, needs for passing away at home, in hospice, or in a hospital are also cited [ 66 , 67 ]. Most residents in one study [ 66 ] reported wanting to pass away in their sleep (31%). Fewer residents would like to be unconscious or comatose during dying (7%) and a small percentage would like to experience the dying process while conscious (3%). The other residents were not clear at the time of the survey about the condition in which they would like to die or did not make any statement for other reasons.
The question of end-of-life care also seems to be essential for residents. For example, most residents wish to die in the presence of familiar people, such as relatives, friends, nursing staff, or hospice companions. “That I can cling somewhere,… to any hands…” [ 41 ]. Others would rather be alone when the time comes [ 22 , 41 ]. When dealing with dying people, physical closeness, human warmth, support, and respectful, open, and honest communication are of great importance [ 41 , 66 ]. Medical and nursing factors are also central. Residents do not want to suffer pain and thirst during the dying process and want to be able to breathe comfortably [ 22 , 40 , 41 , 56 , 66 ]. Many residents do not want to receive life-sustaining measures, including artificial nutrition, resuscitation, surgery, heart–lung machine, ventilator, or dialysis, during the dying phase [ 22 , 40 , 41 , 56 , 66 ]. However, others want to receive life-sustaining treatment in the event of a life-threatening condition [ 50 ]. Residents consider a natural and quick death, which they see as a release, important [ 22 , 49 ].
Spiritual factors also play an essential role when residents face death in a NH. Residents want to die quietly and peacefully, which means that they do not want to be a burden on anyone and want to die without much fuss. They wish for forgiveness and reconciliation, for their mistakes not to be of great relevance in retrospect, and for their loved ones to think back on them positively after their passing [ 41 ]. During the dying process, residents feel the need to maintain their dignity and self-respect and to leave the world laughing [ 66 ].
The wish to die or to actively end life has also been cited in studies [ 33 , 57 , 66 ]. Three of 18 residents interviewed in the Goodman et al. study [ 33 ] want their life to end. Van der Steen et al. [ 66 ] found that residents wish to have ways to end life if they feel it is necessary.
Four of the 41 studies [ 24 , 27 , 60 , 62 ] captured residents’ financial wishes and needs. All four studies found a desire for more money or financial support and financial security. Chuang et al. [ 27 ] also found that residents feel a need to be able to pay the monthly NH fee. If this cannot be accomplished, residents would be discharged or transferred to another NH with lower standards, which they try to avoid.
Studies reported facility-related needs and needs at the structural level, for example, concerning the room occupied [ 19 , 20 , 36 , 38 , 46 , 47 , 60 , 62 ]. Residents wish for a comfortable bed [ 19 ], larger [ 62 ] and temperature-controlled rooms [ 36 ], and the ability to personally furnish the rooms with their own furniture, objects, photos, a television, and a radio [ 46 , 60 ]. Further, needs were expressed for housing facilities that are designed for the elderly and disabled such as the presence of elevators [ 62 ]. Clean housing and sanitary facilities are also important to residents. Regarding these, the wish for improvement was mentioned [ 20 , 62 ]. It is also essential that residents can take care of their own belongings and have a way to lock and store smaller items safely [ 19 , 36 , 38 ]. Other needs related to facility structure include a wish to separate residents with dementia from those without dementia and a wish for more flexible routines. For example, residents would like more flexibility in the timing of taking pills [ 62 ]. Culinary care in the NH also plays an essential role for residents. According to Sonntag et al. [ 62 ], residents feel the need for better food that is age-appropriate and not so monotonous. In addition, residents want to decide what food they get, how much of it, and whether they eat according to a recommended diet. Some wish for more traditional food to be offered and to take meals at their leisure, without time stress, at set times of the day, and with patient and respectful assistance if necessary [ 47 ]. Housen et al. [ 38 ] reported that it is important for residents to have snacks available at their convenience in the NH.
An inability of older people living alone with deteriorating health and physical condition often requires a transition to NH. Thus, the issue of health is of high importance for these NH residents. Most common among this theme was the need to maintain and improve health or to prevent a decline in health [ 33 , 49 , 57 , 60 , 61 , 62 ]. In this context, maintaining both cognitive and physical health status is of high importance. The abilities are seen as a prerequisite for enjoying the last years in the NH: “The few years I have left to live, I want to enjoy them. I can still walk, more or less, well around what you can call walking. You don’t need to put me in a chair yet, a wheelchair or one of them frames. Yeah, I do and wash myself and everything” [ 60 ]. As the worst imaginable scenario, residents describe their condition as a nursing case: “I have no expectations anymore. The principal thing is not to become a nursing case. I do not want to become an invalid like some of the other residents. I do not want to lose my mind. In this case, I would rather die” [ 57 ]. According to Schmidt et al. [ 61 ], residents wish to maintain their physical and sensory awareness.
Additionally, full and honest information about one’s health status is also noted to be essential. While three studies [ 20 , 26 , 60 ] reported that residents want to be fully informed about health status and, if applicable, fatal diagnoses, Gjerberg et al. [ 32 ] found that a small number of residents were unsure whether they might want to receive information of a severe nature or indicated that they did not want to receive information. This is due to fear of harmful consequences, “…that will just leave me thinking. And I would rather not”.
Wishes for mobility or physical activity [ 57 , 60 , 61 ], for physical comfort [ 63 ], and for restful sleep and sleep comfort [ 58 , 60 , 61 ] were also mentioned under the topic of health condition.
Thirteen of the 41 studies [ 18 , 19 , 20 , 27 , 30 , 33 , 35 , 37 , 42 , 46 , 49 , 58 , 62 ] addressed needs related to the behaviors or characteristics of nursing staff or care received. For example, residents want to receive care that is good [ 37 , 58 ], humane [ 62 ], continuous [ 37 , 42 ], competent, skilled [ 27 , 62 ], affectionate [ 62 ], encouraging [ 42 ], and professional [ 19 ]. According to Bangerter et al. [ 19 ], professional care in this regard can be defined as friendly, kind, courteous, emphatic, respectful, and characterized by symmetrical communication. Further, residents want to be perceived as individuals, treated personally and with dignity, and taken seriously [ 30 , 37 , 62 ]. This includes addressing residents personally by name [ 19 ]. They wish staff would reliably take care of them and be concerned about them [ 18 , 27 , 33 , 35 ]. Residents feel the need to trust the nursing staff [ 20 ] and have a good relationship with them [ 33 ]. Sensitivity and motivation on the part of caregivers are necessary to form a trusting relationship possible according to residents [ 42 ]. This does not always seem to be guaranteed: “Not too many of them help too much when we’re not well-they don’t have feelings… They are tired-they have to lift me and I’m heavy. If they have a bad day or bad night, they lose the ability to be sensitive to our condition. Sometimes I feel that they take their frustrations out on us. They lack a little sensitivity” [ 42 ]. Residents wish they were not treated as if they were a nuisance, a problem case, or a child [ 46 , 49 ].
In addition to needs primarily related to nursing staff, residents also reported wishes and needs related to medical care and hygiene. According to different studies [ 42 , 58 , 61 ] personal hygiene is important to residents. This includes bathing and washing facilities [ 58 ], oral hygiene, and regular changing of linens [ 42 ]. In one qualitative study with 10 women and 10 men, some women reported a gender-specific need for personal care to be performed by a caregiver who is a woman herself [ 37 ]. High-quality medical care includes the use of proper equipment during treatments [ 20 ], good skin and wound treatment, expert pain management to prevent discomfort due to physical illness [ 61 ], and monitoring for adverse drug reactions [ 46 ]. Referring to the study by Michelson et al. [ 45 ], residents refuse aggressive medical treatment unless the intervention alleviates pain or results in greater patient comfort or safety. Nakrem et al. [ 49 ] and Sonntag et al. [ 62 ] found that residents hope to receive more active care in the NH, more therapeutic interventions, more physical therapy, and regular fall prevention by NH staff. To provide more quality of life in the NH, residents wish for more help and support with daily living activities [ 27 , 62 ]. Frustration is reported because this support is not provided by staff without being asked [ 42 ]. Residents reported care needs for eating and drinking, excreting, constipation, sleep disturbances, loss of appetite, chronic illnesses (including asthma, arthritis, hypertension), and visual impairment [ 23 , 61 ]: “The constipation has given me piles in that my whole body is affected” [ 23 ].
In the study by Levy-Storms et al. [ 42 ], excessive cross-boundary support from nursing staff is sometimes reported: “Let me eat (feed myself) with a spoon, like normal people”. This is countered by the reports of residents who experience a lack of individualized and skilled care and attention from NH staff. This is seen as a problem of limited staff capacity, which is why the wish for more staff was mentioned to make the above-mentioned needs and wishes feasible [ 62 ].
Contact with other people is a central need for many NH residents. While a good and trusting relationship with the nursing staff has already been presented as the basis for humane and personal care, residents name social contacts and friendships as significant for a satisfying life in the NH. Residents described needs for sociability and conversation in their lives [ 30 , 62 ], for human connection [ 52 ], for belonging [ 30 ], for a good and personal atmosphere in the home [ 60 ], for harmony [ 23 ], and for meaningful relationships [ 55 ].
Relationships with other NH residents are highly relevant, as these play a significant role in determining the daily environment. Residents actively choose their contacts in the NH, talking about their experiences in the home, their past lives, and their families. They spend time together and do things together: “I am in touch with Anna. She lives down the corridor. She is lucid, and we can talk. She comes to visit me, and then we talk… and if she gets some sweets, she comes to me [to share] and if I get something she appreciates from my family, then I share it with her” [ 21 ]. Residents reported a wish for all residents to live better together [ 62 ] and a desire for personal and social relationships with other residents [ 21 , 27 , 28 , 49 , 60 ].
In addition to the need for in-home relationships with peer residents, the wish for good relationships with family members, relatives, and friends outside the home was also frequently mentioned. For example, residents would like to maintain family and friendship ties [ 21 , 27 , 28 , 52 , 60 , 63 ] and spend more time with and are regularly visited by their loved ones [ 18 , 20 , 21 , 30 , 35 , 62 ].
Residents also wish to maintain contact with their former social environment and the community they lived in before moving. Residents do not want to lose connection to their former lives and the world outside the NH [ 28 , 49 , 52 , 63 ]: “I like getting out to the town, you know. I just like to see if there is any building going on or what’s happening in the town” [ 52 ]. Residents indicate they want to maintain their past relationships and ties because they are identity-building [ 52 ]. Ways to maintain a connection to the outside world include: watching television, listening to the radio, reading the newspaper, or sitting at the front door to watch people come and go [ 63 ].
As important as human contact is, a certain degree of privacy is likewise important. This was shown by seven studies [ 19 , 20 , 27 , 28 , 33 , 38 , 60 ]. Residents desire privacy when using the restroom and performing personal hygiene [ 19 , 60 ]. The wish for privacy further includes the need for a private space [ 60 ], which residents understand to mean, for example, occupying a single room [ 28 ], but also being able to receive visits or make telephone calls in a private setting [ 38 ].
Quietness in the NH is also crucial to residents’ privacy. They wish to rest undisturbed [ 33 ] and that they are not disturbed by loud noises [ 60 ].
Residents who inevitably interact with others due to the institutional setting want to spend time alone [ 60 ] and consider it important for social and psychological privacy that nursing staff knocks upon entering the room [ 28 ]. Cooney et al. [ 28 ] found that residents of large facilities particularly complained about a lack of privacy. In some cases, beds are separated only by curtains, which ensures a very low level of quiet and privacy: “You only have a curtain separating you” [ 28 ].
Many of the wishes and needs of residents are also in the psychological, emotional, and safety domains. Inner-personal and psycho-emotional needs, for example, were named in the study by O’Neill et al. [ 52 ]. Residents wish to have a positive attitude and maintain their own identity, self-efficacy, resilience, and coping strategies. They would like to take each day as it comes and not worry too much about tomorrow. According to Franklin et al. [ 30 ] and Schmidt et al. [ 61 ], residents want to experience a daily routine, to be able to enjoy the little things in everyday life, and to find a sense of meaning in the NH’s daily routine to experience themselves as part of the environment. It seems essential for residents to have a sense of belonging, to feel understood, and to have a sense of community [ 60 ]. Other studies report similar findings [ 28 , 61 , 63 ]: residents want to be themselves, not lose a sense of self, and be recognized as independent individuals. To ensure this, residents are concerned about their appearance among others. One qualitative study showed that some women want to take care of their appearance. They state that this has a positive effect on their self-expression and self-esteem [ 28 ].
Further, having options to do what they want when they are miserable is essential [ 18 , 36 ]. Fundamental to residents is that they feel needed, valued, and welcomed [ 27 ]. Schmidt et al. [ 61 ] also found that expressing emotions, expressing one’s will, being talked to and touched, as well as touching others are important for residents’ emotional and psychological well-being. NH residents wish for social and emotional support in the home [ 46 ] and psychological support for depression, confidence loss, memory loss, anxiety, anger, and irritability [ 23 ].
A sense of security is also important to residents. They wish to be safe and secure in the NH [ 49 , 60 , 61 ]. This includes knowing that the home has safety and security measures installed and that residents always have quick access to emergency services [ 20 , 49 ]. Being protected from self-harm and from disturbance by other residents is also part of living safely in an NH [ 46 ].
Religiosity and spirituality play an important role for many residents. For example, they wish to participate in religious ceremonies [ 27 , 38 , 43 , 58 , 61 ]. They want to express themselves religiously in their lives, follow cultural customs, and feel spiritually connected to others [ 27 , 38 , 61 , 63 ]: “I can’t go to the Sunday ceremony, but I read the Bible by myself… You will feel consoled after you read it” [ 27 ]. Specific activities that residents undertake to meet their religious and spiritual needs are cited by Man-Ging et al. [ 43 ]: praying for themselves, reflecting on past lives, turning to a higher presence, and plunging into the beauty of nature.
One study [ 48 ] addressed the sexual needs of NH residents. More than half (51%) of the residents surveyed reported a sexual tension, including more men (65%) than women (41%). In addition, residents reported the following as their most important sexual needs: need for conversation, need for respect, need for tenderness, need for support in any situation, and need for giving and receiving emotional support, by which residents primarily mean empathy and understanding.
The ten studies that used the CANE questionnaire for data collection are presented separately. The CANE questionnaire covers 25 areas of daily life in the NH to assess older people’s physical, psychological, social, and environmental needs. A distinction is made between met and unmet needs. Table 4 shows the outcomes of CANE studies and gives an overview of the five most frequently mentioned needs in each of these ten studies. Eight studies reported both unmet and met needs [ 29 , 34 , 44 , 51 , 54 , 59 , 64 , 68 ]. One study reported only unmet needs [ 53 ], and the study by van der Ploeg et al. [ 65 ] reported the sum of met and unmet needs differentiated between residents with dementia, residents without dementia, and relatives. Looking at the results without including the study by van der Ploeg et al. [ 65 ], the five most frequently mentioned met needs are in the areas of food, household skills, physical health, accommodation, and self-care. In comparison, the five most frequently unmet needs are in the areas of daytime activities, psychological distress, company, eyesight/hearing, and memory. Some of the five most frequently identified needs that residents have according to CANE studies were also highlighted by the analysis of the 41 other studies. These include the following needs in the area of unmet needs: daytime activities, psychological distress, and company. The met needs, which have also been addressed by the other studies, are as follows: food, physical health, and accommodation. Additional needs identified through the CANE studies that have not been mentioned in the previous analysis are household skills and self-care in the area of met needs and memory and eyesight/hearing related to unmet needs.
Outcomes CANE studies.
Study | Met Needs Top 5 | Unmet Needs Top 5 | |
---|---|---|---|
Ferreira et al. (2016) Portugal [ ] | 1. Household Skills 2. Food 3. Physical health 4. Drugs 5. Money | 1. Daytime activities 2. Eyesight/hearing 3. Psychological distress 4. Company 5. Memory | |
Hancock et al. (2006) UK [ ] | 1. Household skills 2. Accommodation 3. Self-care 4. Money 5. Food | 1. Daytime activities 2. Psychological distress 3. Memory 4. Eyesight/hearing 5. Behavior | |
Mazurek et al. (2015) Poland [ ] | 1. Food 2. Physical health 3. Household skills 4. Accommodation 5. Mobility/falls | 1. Company 2. Psychological distress 3. Eyesight/hearing 4. Intimate relationships 5. Daytime activities | |
Nikmat and Almashoor (2015) Malaysia [ ] | 1. Accommodation 2. Looking after home 3. Food 4. Money 5. Self-care | 1. Intimate relationships 2. Company 3. Daytime activities 4. Caring for another 5. Memory | |
Orrell et al. (2007) UK [ ] | n.a. | 1. Daytime activities 2. Memory 3. Eyesight/hearing 4. Company 5. Psychological distress | |
Orrell et al. (2008) UK [ ] | 1. Food 2. Accommodation 3. Household skills 4. Mobility/falls 5. Self-care | 1. Daytime activities 2. Company 3. Psychological distress 4. Eyesight/hearing 5. Information | |
Roszmann et al. (2014) Poland [ ] | 1. Drugs 2. Physical health 3. Self-care 4. Household skills 5. Continence | 1. Accommodation 2. Memory 3. Food 4. Psychological distress 5. Company | |
Tobis et al. (2018) Poland [ ] | 1. Looking after home 2. Food 3. Physical health 4. Accommodation 5. Self-care | 1. Company 2. Psychological distress 3. Eyesight/hearing 4. Intimate relationships 5. Daytime activities | |
van der Ploeg et al. (2013) Netherlands [ ] (Here presented the sum of met and unmet needs distinguished between residents with and without dementia and relatives as proxies) | Residents with dementia 1. Household skills 2. Food 3. Mobility/falls 4. Self-care 5. Physical health | Residents without dementia 1. Household skills 2. Mobility/falls 3. Food 4. Accommodation 5. Physical health | Relatives 1. Food 2. Household skills 3. Accommodation 4. Mobility/falls 5. Self-care |
Wieczorowska-Tobis et al. (2016) Poland [ ] | 1. Physical health 2. Caring for another 3. Mobility/falls 4. Food 5. Continence | 1. Daytime activities 2. Company 3. Psychological distress 4. Eyesight/hearing 5. Intimate relationships |
The objective of this scoping review was to identify the wishes and needs of NH residents. The results show numerous needs that were mapped to 12 themes. In 35 studies, residents were interviewed; in 12 studies, residents and proxies were interviewed; and only proxies were interviewed in four studies. This shows that residents can be aware of perceived needs and wishes and can communicate them. This is valid not only for residents without cognitive impairment [ 69 ], but also for residents with dementia [ 11 ]. Studies show that third-party assessments of needs sometimes differ from what NH residents report [ 20 , 35 , 44 , 46 , 54 , 65 ]. This finding is especially important for residents with dementia, as needs elicitation for these individuals is often only collected through a proxy survey [ 11 ]. It is essential to directly survey NH residents, including residents with dementia, about their wishes and needs. Interviewing proxies can provide additional and helpful information, but is not a substitute for speaking directly with the affected resident.
The scoping review results further indicate that wishes and needs on specific topics differ between individual residents. For example, some would like to receive life-sustaining measures, while others reject them. This high degree of individuality and complexity must be considered in assessing needs. The wishes and needs should be recorded with the individual residents in private conversations, reflected on repeatedly, and the way they are dealt with should be adjusted if necessary. This requires time, expertise, and willingness. Often, there is a lack of human resources to ensure this task is completed. Complaints about a shortage of skilled workers and high workloads in NHs are frequent. [ 70 , 71 ]. These circumstances can lead to less quality in care and can make it difficult to have an individualized approach to residents [ 72 ]. Assessment tools, such as the PELI-NH or CANE questionnaire, can be helpful in conducting a comprehensive needs assessment. Such tools can provide clues to existing needs and wishes and present an overview. The CANE questionnaire, for example, does not address all the areas in which NH residents experience needs. Topics that are relevant for residents according to the present study, such as death/dying, autonomy, interaction of nursing staff with residents, and religion/spirituality, are not surveyed by this instrument. When caregivers or other persons refer to the CANE questionnaire in order to assess needs, they should be aware of this. Accordingly, in-depth and recurring interviews with residents are indispensable to consider the high complexity and individuality of wishes and needs. Only in this way can the results be validated and unmet needs can be discovered.
Themes of high relevance seem to be the following, as they were mentioned frequently and in multiple studies: “autonomy, independence, choice, and control”, “death, dying, and end-of-life”, and “medication, care, treatment, and hygiene”. Notably, needs cannot be categorized in a blanket way in which some needs are of higher importance than others. For example, needs in the nursing area may weigh the heaviest for some residents, while others consider the needs for autonomy and self-determination to be most important.
Older adults are aware of their wishes and needs, but in many cases they do not communicate them [ 73 ]. Sometimes, when asked about their wishes and needs, residents report that they do not wish for anything because nothing would change anyway. The reason for this seems to be an experienced lack of respect for their wishes. For residents who have the feeling that their personal and subjective wishes and needs are not heard and that addressing them does not lead to any change, communicating their needs does not make sense [ 62 , 69 ]. As another reason for non-communication, older adults in home care state that they do not want to be a burden to anyone, and they do not want to complain about the age-related ailments that are common for them [ 73 ]. In these situations, caregivers should treat residents with appreciation and respect. It is important to schedule sufficient time to talk about wishes and needs. It is also important to take residents seriously and show them that expressing their wishes and needs will lead to positive changes in their lives by addressing them. The patronizing communication that often occurs on the part of NH staff may also contribute to NH residents not always openly communicating their wishes and needs, as satisfaction with such interactions can be low [ 74 ]. Further, the use of elderspeak due to stereotypical expectations of NH residents’ communication skills can lead to residents not feeling understood or respected and, as a result, they tend to be quiet and accept things without argument [ 75 , 76 ]. As a result, non-communicated needs go unrecognized and, accordingly, unmet. Communication training or person-centered interventions for caregivers could contribute to improved caregiver–patient communication, which could lead to more openness on the part of the residents and, consequently, fewer unmet residents’ needs [ 77 , 78 ].
Shared decision making was a frequently mentioned need. However, sometimes less is more. The study by Reed et al. [ 79 ] shows that older people prefer to have fewer options from which to choose than younger people. This suggests that some NH residents may be overwhelmed by too many options. NH staff should individually ask residents whether they prefer to choose from reduced options in some areas of their lives.
The present study has some limitations. First, it must be said that the concepts of “wishes” and “needs” are very complex, and there is no common definition [ 80 ]. This can lead to the fact that all researchers involved understand something different by the concept under investigation. A definition was created and applied throughout to prevent this from happening and to ensure consistent study inclusion, data extraction, and analysis. Further, the 51 included studies are diverse in research design, study population, and objectives. For example, there are studies that surveyed residents as well as studies that surveyed proxies. Some studies focused on residents with dementia, while others focused on residents without cognitive impairment, or on unbefriended residents. The research focus was not primarily on wishes and needs in all studies. Constructs such as quality of life, dignity, or thriving were sometimes of substantial research interest. However, relevant wishes and needs were mentioned in the survey on these constructs, which were analyzed here. In the analysis of the quantitative studies, only the five most frequently mentioned wishes and needs were recorded in each case. The disadvantage here is that some wishes and needs were not recorded as a result. As qualitative studies do not include frequencies and therefore no ranking, all needs and wishes were extracted in these, which can lead to an overweighting of the qualitatively surveyed wishes and needs. Further, only studies in English and German were included. This can be explained by the language skills of the researchers but presents the possibility that relevant studies were not included. Consequently, the results only represent an overview of possible wishes and needs as stated by residents or their proxies. In no way do the results claim to be exhaustive of all wishes and needs of NH residents.
Among this study’s strengths is a very extensive literature search of 12 databases that was conducted. Additionally, the evidence examined is extensive, with 51 studies, as demonstrated by the high richness of results.
Twelve topics were identified to which the wishes and needs of NH residents can be assigned. This reflects the high complexity and diversity of the needs and wishes of the heterogeneous group of NH residents.
For many NH residents, the NH represents the last phase of life before death. Residents should live a contented and fulfilling life in the home. Essential to achieving satisfaction is the fulfillment of individual wishes and needs. A comprehensive needs assessment on resident wishes and needs should take place in NHs. Speaking directly with the residents is essential to success.
The results of this study provide an evidence-based framework that can serve as a basis for holistic and person-centered care in NHs.
This research received no external funding.
R.S. contributed to the design, evidence search, data extraction, data analysis, and drafted the manuscript. J.L.O. contributed to the design, evidence search, data extraction, data analysis, and revised the manuscript. M.K. contributed to the design, evidence search, data extraction, data analysis, and revised the manuscript. S.N. initiated the study, contributed to the design, and revised the manuscript. A.T. initiated the study, contributed to the design, and revised the manuscript. All authors have read and agreed to the published version of the manuscript.
The authors declare no conflict of interest.
Publisher’s Note: MDPI stays neutral with regard to jurisdictional claims in published maps and institutional affiliations.
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Nursing homes play a vital role in providing care for the elderly and individuals with disabilities who are unable to live independently. As a student studying nursing or healthcare, you may be required to write essays on various topics related to nursing homes. To help you get started, here are 128 nursing home essay topic ideas and examples.
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Nursing Home Care. citizens that "There is a nursing home in almost every small town.". The populations of these towns are predominately white. In the case of Mason county Illinois, the population lacks diversity with about 97% being white non-Hispanics (US Census, 2017). It would make sense that in a nursing home populations show the lack ...
Reflection on an experience in a nursing home. Recently I reflected on an action that made changes in my nursing knowledge and practice. When I was working as a staff in an aged care within the high care unit, I happened to witness a situation in which I got involved. Most of the residents in the high care unit were using continent pads.
The first thing I noticed when I began working in a nursing home was the smell. It's everywhere. A mix of detergent and hospital smell and, well, people in nursing homes wear diapers. It's one of ...
Free essays on nursing home provide valuable information on the roles, challenges, and benefits of nursing homes in the healthcare system. These essays explore various aspects of nursing home care, including the quality of care, nutrition, medication management, and resident satisfaction. They highlight the importance of nursing home staff ...
So, why are most of them in most residential homes? Nursing homes are vital to the elderly community as they provide 24 hrs 7 days a week nursing care to the elderly. These homes also provide short-term stays for people with illnesses or injuries, those coming out of surgery, others who require therapy be it physical or occupational.
Introduction Nursing home facilities Nursing homes are specialized facilities that offer comprehensive and continuous medical care to individuals, particularly seniors and those with persistent health conditions.
Nursing Essay topics ideas for healthcare students of all levels - basic, moderate, and advanced. Also find FAQs and tips on how to write a well-curated essay!
Quality of Care in Nursing Homes must be Improved It is a common occurrence for parents to grow old and require constant care, so many people decide to... read full [Essay Sample] for free
Fall Rate Reduction in a Nursing Home. Abstract This paper will present a comprehensive quality improvement initiative focusing on minimizing the fall rate among patients in Nursing Home X. This nursing home is for exceptionally skilled nurses in Connecticut. The study will employ a macro-systems analysis to evaluate the facility's mission ...
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More than 75% of the residents of a nursing home say they want to return to their home and gain control of who they were. They feel unwanted, unappreciated and most importantly unloved. Many people do not have a choice but to go into retirement homes/nursing homes after they reach a certain age or a certain level of health and capability to ...
Descriptive Essay About Nursing Home. Better Essays. 1507 Words. 7 Pages. Open Document. As I walked through the doors of the nursing home I noticed most of the residents were sitting in the hallways in their wheel chairs. Some of the residents were rolling down the hall with no destination while others were carrying on conversations with other ...
I have worked as a paramedic for over 3 years now. In that time, I have been to numerous nursing homes as a result of both emergency calls, and as part of... read full [Essay Sample] for free
Reflection on an experience in a nursing home. Recently I reflected on an action that made changes in my nursing knowledge and practice. When I was working as a staff in an aged care within the high care unit, I happened to witness a situation in which I got involved. Most of the residents in the high care unit were using continent pads.
This manuscript is a "must read" for nursing home stakeholders to better understand the entirety of the role of RNs in nursing homes as well as the importance of RNs as leaders. Stakeholders in this case include federal and state regulators, policymakers, nursing educators, nursing home administrators and owners, and nursing home staff including physicians and other providers that care for ...
Essay About Working In A Nursing Home. 799 Words4 Pages. A life changing challenge I had was working in the nursing home. In high school, my senior year, I signed up to be in the CNA program, where you could get your CNA license. In the beginning of the year, we learned how to do different activities to take care of someone in need.
Nursing home residents are not a homogeneous group. Accordingly, a wide range of needs and wishes are reported in the literature, assigned to various topics. This underscores the need for tailored and person-centered approaches to ensure long-term well-being and quality of life in the nursing home care setting.
Volunteering at a Nursing Home Essay. I ambitiously decided that I would brighten the lives of the elderly by volunteering at a rest home, but discovered that the elderly were being neglected, shoved aside and forgotten. As I stepped into the home a pungent odor penetrated my nostrils, causing an instantaneous gagging reflex.
The Biden administration set stringent new federal staffing rules. But for years, nursing homes have failed to meet the toughest standards set by states.